SEARCHING OUT SOLUTIONS.

Dysautonomia SOS empowers people impacted by Dysautonomia. We do this by raising public awareness, connecting patients with local resources, and furthering advancements in research and treatment.

 

Please join us and show your support for #pots awareness and research, a type of #dysautonomia ! Learn more on our website (link in profile). <3

Please join us and show your support for #pots awareness and research, a type of #dysautonomia ! Learn more on our website (link in profile). <3

@carrie_justmildlymedicated getting her IV therapy on. Go Carrie! 

#dysautonomialookslike #dysautonomia #dysautonomiasos

@carrie_justmildlymedicated getting her IV therapy on. Go Carrie!

#dysautonomialookslike #dysautonomia #dysautonomiasos

If you have not seen it, check out the awesome growing album of people living with Dysautonomia! http://on.fb.me/1bs3dAO
See what it’s like to deal with these disabling conditions, and how amazing these folks are to overcome challenges to do things most people take for granted.
October is Dysautonomia Awareness Month - lets not be an “invisible illness” this month! Send pics to info@dysautonomiaSOS.org.
Let&#8217;s show what #dysautonomialookslike and raise #dysautonomia awareness! Tag us in you pics of triumphs and challenges to be added to FB, Twitter, IG campaign! 

We will not be invisible! Share, tag, etc&#8230;. (Keep it PG pls!) &lt;3 include @dysautonomiasos&#160;!!!

Let’s show what #dysautonomialookslike and raise #dysautonomia awareness! Tag us in you pics of triumphs and challenges to be added to FB, Twitter, IG campaign!

We will not be invisible! Share, tag, etc…. (Keep it PG pls!) <3 include @dysautonomiasos !!!

It&#8217;s #dysautonomia awareness month!
This month will be photobombing you with loads of awareness pics and graphics to share. Include @dysautonomiasos and/or dysautonomialookslike in your own posts so we see them! 

Learn more or link to our page devoted to this month: http://bit.ly/16gWntQ 

Much &lt;3&#160;!!!

It’s #dysautonomia awareness month!
This month will be photobombing you with loads of awareness pics and graphics to share. Include @dysautonomiasos and/or dysautonomialookslike in your own posts so we see them!

Learn more or link to our page devoted to this month: http://bit.ly/16gWntQ

Much <3 !!!

A HUGE THANK YOU to Heather and Josh, newly married, who donated money to Dysautonomia SOS in leu of giving out wedding favors. We wish you both the best and can not thank you enough!

Aren’t they adorable?!?!??!

Buy Lindt Chocolate and help raise money for Dysautonomia SOS&#8217;s projects and mission! Going on  through July 30th, just click HERE. Please share and spread the word. Thanks to our awesome hosts, Elizabeth and Naomi!

Buy Lindt Chocolate and help raise money for Dysautonomia SOS’s projects and mission! Going on  through July 30th, just click HERE. Please share and spread the word. Thanks to our awesome hosts, Elizabeth and Naomi!

Shop for back to school items through this link and help earn referral money for Dysautonomia SOS (at no cost to you!)!
(via K-12 School Essentials at Amazon.com)

Shop for back to school items through this link and help earn referral money for Dysautonomia SOS (at no cost to you!)!

(via K-12 School Essentials at Amazon.com)

If you had not already heard, the FDA is threatening to remove Midodrine from the market and it may become unavailable in the US. 
 Lindsay Relph has started a petition to challenge this, and we encourage you to sign, and also to contact your Congressional Representative about this issue. They need to know that Midodrine is life changing for many people with #dysautionomia. 
 Here is link to all the House Congressional Members: http://www.house.gov/representatives/
PETITION on Change.org
(via Directory of Representatives · House.gov)
If you had not already heard, the FDA is threatening to remove Midodrine from the market and it may become unavailable in the US.

Lindsay Relph has started a petition to challenge this, and we encourage you to sign, and also to contact your Congressional Representative about this issue. They need to know that Midodrine is life changing for many people with #dysautionomia.

Here is link to all the House Congressional Members: http://www.house.gov/
representatives/

PETITION on Change.org

(via Directory of Representatives · House.gov)

From Lynn Riggio:
POTS Service dog named Usher is looking for votes!  Usher is an amazing service dog that helps POTS patient Courtney Powell live her life to the fullest. She entered Usher into Modern Dog Magazine&#8217;s Star Dog contest. The winner gets a two page spread in the magazine, which Courtney will use to raise awareness about dysautonomia, if Usher wins. Please vote for Usher (one click, no need to register) and consider sharing it with your friends on your personal FB page. You can vote every 12 hours. Usher is currently in the Top 10, so he has a really good chance of winning, but we need your help!
(via Star Dog Photo Contest Entry - Usher | Modern Dog magazine)
PLEASE VOTE AND HELP RAISE AWARENESS FOR DYSAUTONOMIA!

From Lynn Riggio:

POTS Service dog named Usher is looking for votes!

Usher is an amazing service dog that helps POTS patient Courtney Powell live her life to the fullest. She entered Usher into Modern Dog Magazine’s Star Dog contest. The winner gets a two page spread in the magazine, which Courtney will use to raise awareness about dysautonomia, if Usher wins. Please vote for Usher (one click, no need to register) and consider sharing it with your friends on your personal FB page. You can vote every 12 hours. Usher is currently in the Top 10, so he has a really good chance of winning, but we need your help!

(via Star Dog Photo Contest Entry - Usher | Modern Dog magazine)

PLEASE VOTE AND HELP RAISE AWARENESS FOR DYSAUTONOMIA!